Provisional Programme
XXXI International Conference
The Pontifical Council for Health Care Workers
(for Health Pastoral Care)
Vatican City, 10-12 November 2016
Towards a Culture of Health that is Welcoming and Supportive at the Service of People with Rare and Neglected Pathologies
Informing in order to know;
Knowing in order to act;
Acting in order to treat;
Treating in a way that respects the life and the dignity of the patient and the environment,
A culture of health that is welcoming and supportive,
With an outlook of hope on the future.
FIRST DAY
Thursday 10 November 2016
Item 1 on the Agenda
OPENING CEREMONY
(9.00-11.30) The General Chairman of the International Conference
Msgr. Jean-Marie Mupendawatu
Secretary of the Pontifical Council for Health Care Workers
(Holy See)
9.00-9.05 Prayer and a minute’s silence for H.E. Msgr. Zygmunt Zimowski
9.05-9.15 Words of Greeting
His Eminence Cardinal Peter Kodwo Appiah Turkson
Prefect of the Dicastery for Promoting Integral Human Development
(Holy See)
9.15-9:45 Greetings of Authorities and Personalities
His Eminence Cardinal Francesco Montenegro
The Metropolitan Archbishop of Agrigento and President of the Episcopal
Commission for Charity and Health
(Italy)
The Hon. Beatrice Lorenzin
Minister of Health
(Italy)
H.E. Msgr. Ducange Sylvain SDB
The Auxiliary Bishop of the Archdiocese of Port-au-Prince and member of the
Governing Board of the ‘Good Samaritan’ Foundation
Dr. Anthony Tersigni
The President of the Governing Board of the International Committee of Catholic
Health-care Institutions – C.I.I.S.A.C.
(USA)
Dr. Fabrizio Pulvirenti
An Italian Medical Doctor who had Ebola but Recovered
(Italy)
A Person with a Rare Pathology
(Sabin Vaccine Institute)
Dr. Augustine Mutsunga
A Congolese medical doctor with a study grant from the ‘Good Samaritan’ Foundation
specialising at the Catholic University of the Martyrs of Uganda, Kampala
(The Democratic Republic of the Congo)
9.45-10.15 PROLUSION: Dr. Peter Hotez
President of the Sabine Vaccine Institute
(USA)
10.15-10.55 PROLUSION: Prof. Riccardo Cortese
Founder of the Research Institute of Molecular Biology (IRBM) and Chief Executive of
the Biopharmaceutical Society OKAIROS
(Italy)
10.55-11.10 OFFICIAL OPENING OF THE XXXI INTERNATIONAL CONFERENCE
His Eminence Cardinal Pietro Parolin
Secretary of State of His Holiness
(Holy See)
11.10-11.40 Family Photograph – Visit to an Exhibition – Break
11.40-11.45 Video summarising the programme of the XXXI International Conference
11.45-13.00 Dialogue between a journalist, a social worker and a health-care worker with a family
that has a member suffering from a rare pathology
(Sabin Vaccine Institute)
13.00 End of the Session
Item 2 on the Agenda
THE STATE OF THE QUESTION – WHAT CAN WE KNOW AND DO?
In two different halls, contemporaneously and with the same methodology, two sessions of in-depth analysis will be held on the two typologies of pathologies chosen for study. The first part of the session will be from 14.30 to 16.00 and the second part from 17.00 to 18.40.
14.30-16.00
| RARE PATHOLOGIES | First Session | NEGLECTED PATHOLOGIES |
| Prof. Andrea Piccioli | Chair | Director |
| Director of Oncological Orthopaedics | WHO/America | |
| Umberto I – Rome | ||
| Dr. Domenica Taruscio | First Speaker | Functionary WHO/Africa |
| Director of the Centre for Rare Diseases | 20m | Brazzaville |
| Epidemiology | Republic of the Congo | |
| Advanced Institute of Health Care | and | |
| Health-care policies | ||
| Australia | Second Speaker | The Catholic University |
| 20m | of Medicine, Tanzania, | |
| Prevention, | the Bugando Medical Centre | |
| Treatment | ||
| and | ||
| Research | ||
| Alcaptonuria | Two Short Contributions | Ebola (DRC) |
| Dr. Helena Glasova Slovakia | ||
| Canada | 30m | Zika (Brazil) |
| Dr. Marco Tartaglia
Baby Jesus Hospital |
Discussant | India |
| 20m |
16.40-17.00 Break
17.00-18.40
| RARE PATHOLOGIES | Second Session | NEGLECTED PATHOLOGIES |
| Prof. Fabrizio Soccorsi | Chair 10m? | Prof. Paul D’Arbela |
| Personal Physician of | Professor of Medicine and Cardiology | |
| the Holy Father | ||
| 10 Principal Rare Pathologies | Speaker | 10 Neglected Tropical Diseases
Africae Munus |
| USA | 20m | Mozambico |
| Prof. Vincent Han-Sun | 2 Speakers | Fra’ Florent |
| President of the FU JEN | Short contributions on the current situations of both typologies | Buruli Ulcer 15m |
| Catholic University in Taiwan 15m | ||
| Don Santiago de la Riva 15m | Leprosy 15m | |
| Board Member of the Spanish | Minister of Health | |
| Federation on Rare Diseases – FEDER | The Hon. Nila Farid Moeloek (Indonesia) | |
| (Spain) | or ambassador | |
| Bahar Budiarman (Indonesia) | ||
| Dr. Marco Tartaglia
Baby Jesus Hospital |
Discussant | India |
| 40m |
18.40-19.00 One of the two discussants summarises and ends the discussions of the two sessions
SECOND DAY
Friday 11 November 2016
Item 3 on the Agenda
ROUND TABLE
SOCIO-POLITICAL, ECONOMIC AND JURIDICAL-ETHICAL ASPECTS FROM THE POINT OF VIEW OF RESPECT FOR THE LIVES, THE DIGNITY AND THE RIGHTS OF PATIENTS AND THE COMMITMENT TO BE WELCOMING AND SUPPORTIVE
(9.00-10.40) Chair:
Margaret Scotford Archer
The President of the Pontifical Academy of Social Sciences
(United Kingdom)
The Human, Social, Political and Economic Problems of People with Rare Pathologies
The Hon. Konstanty Radziwiłł (20m)
Minister of Health
(Poland)
Legislation and Ethics to Protect the Lives, the Dignity and the Rights of Patients, and the Responsibilities of Institutions
H.E. Msgr. Vincenzo Paglia (20m)
The President of the Pontifical Academy for Life
(Holy See)
The Role of Associations of Sick People, Families and Socio/Health-Care and Pastoral Workers
H.E. Msgr. Nunzio Galantino (20m)
General Secretary of the Italian Bishops’ Conference – C.E.I.
(Italy)
The Role of the Church and Faith Communities in the Recent Ebola Epidemic in Africa
(a Brother of St. John of God) (20m)
USAID’s Commitment to the Fight against Neglected Tropical Diseases (20m)
10.40-11.00 Break
11.00-12.20 Dialogue
Discussant: Prof. Jacques Simporè MI
Professor of Genetics and Molecular Biology at the University of Ouagadougou and
Rector of the University of Thomas Aquinas.
Director of the Centre for Biomolecular Research CERBA/LABIOGENE
(Burkina Faso)
Item 4 on the Agenda
THE QUESTION OF MEDICAL PRODUCTS AND ACCESS TO TREATMENT
(12.20-13.00) Chair: Prof. Maria Paola Costi
Department of Life Sciences, the University of Modena and Reggio Emilia
(Italy)
Access to Medicines for the treatment of neglected tropical diseases
Dr. David Reddy
CEO Medicines for Malaria Venture – M.M.V.
(Switzerland)
Progress towards the IRDiRC Goals: 200 New Treatments for Rare Diseases by 2020.
Dr. Paul Lasko
Chair, International Rare Disease Research Consortium (IRDiRC), Scientific Director of the Institute of Genetics, Canadian Institutes of Health Research
(Canada)
13.00 End of Session
(14.30-14.50) Discussant: Dr. Gaspare Guglielmi
Head of the Area of Biotechnologies of the Italian Society of Hospital Pharmacists –
S.I.F.O
(Italy)
Prof. Mario Melazzini
The President of the Governing Board of the Italian Agency for Medical Products
(AIFA)
(Italy)
14.50-16.00 Dialogue
16.00-16.20 Break
Item 5 on the Agenda
CARE THAT RESPECTS PATIENTS AND THE ENVIRONMENT: A BRIEF RE-READING OF THE ENCYCLICAL
LAUDATO SI’
16.20-16.30 Paper by Dr. Antonio Maria Pasciuto Introducing the Dialogue and the Discussion
16.30-17.00 Discussion Chaired by Dr. Antonio Maria Pasciuto
Specialist Medical Doctor in Environmental Medicine
(Italy)
Item 6 on the agenda
GOOD PRACTICES
17.00-19.00 Chair: Fr. Leocir Pessini – Introduces the Session with a Paper (Thoughts) on
Welcoming and Supportive Pastoral Care (10m)
The Superior General of the Camillians
(Brazil)
- Roch Christian Johnson– Buruli Ulcer
Maître-Assistant des Universités (CAMES) CIFRED- Université d’Abomey-Calavi
Conseiller Médical Fondation Raoul Follereau (15M)
(Benin)
- Yohei Sasakawa
The President of the Nippon Foundation
Good Will Ambassador of the WHO for the Elimination of Leprosy; Good Will Ambassador of the Japanese Government for the Human Rights of People with Leprosy (15m)
(Japan)
- Babar Qureshi
Director of the Programme of the CBM for Neglected Tropical Diseases – SAFE Strategy to Defeat Trachoma in North Ethiopia
CBM/Italy (Project Ethiopia) (15m)
- Mario C. Raviglione
Director of the ‘Global Tuberculosis Programme’ (GTB)
The World Health Organisation
Department of TBC/WHO Geneva (15m)
- UNITAID (15m)
- Nicola Spinelli Casacchia
The President of the Italian Federation of Rare Diseases Uniamo FIMR Onlus (15m)
(Italy)
Dialogue (30m)
Discussant: Dr. Mario Angi
Ophthalmologist at the University of Padua and President of the NGO CBM
(Italy)
THIRD DAY
Saturday 12 November 2016
Item 7 on the Agenda
AN OUTLOOK OF HOPE ON THE FUTURE: REASONS, CONCLUSIONS AND RECOMMENDATIONS
9.00-09.20 The Reasons for Hoping in a Better Future (20m)
Prof. Giuseppe Novelli
Rector of the ‘Tor Vergata’ University of Rome
(Italy)
9.20-10.00 Conclusions and Recommendations
Prof. Fr. Michele Aramini
Lecturer in Theology at the Catholic University of the Sacred Heart – Milan
(Italy)
10.00-10.30 General Chairman Msgr. Jean-Marie Mupendawatu (10m)
General Observations
His Eminence Cardinal Peter Kodwo Appiah Turkson (20m)
END OF THE DELIBERATIONS OF THE XXXI INTERNATIONAL CONFERENCE
11.30 Audience with the Holy Father Francis
………………………………..
Information
Conference Secretariat
Via della Conciliazione, 3 – 00193 Rome, Italy
Telephone: (06) 69883138
Fax: (06) 69883139
E-mail: opersanit@hlthwork.va
Beginning from November 10, 2016, the Secretariat will move to the Synod Hall, Vatican City. Entrance from Piazza del Sant’Uffizio, Left Colonnade of St. Peter’s Square.
The registration fee is euro 150.00, which entitles you to receive the special issue of the journal Dolentium Hominum containing the proceedings of the Conference, and the break tea or coffee.
There will be a lunch buffet on Thursday and Friday (1 pm) payable during the Conference.
All those who wish to participate in the International Conference must send in the completed registration form to the Pontifical Council for Health Care Workers, 00120 Vatican City, not later than October 26, 2016,
The registration fee can be paid through a bank transfer to:
Pontificio Consiglio per gli Operatori Sanitari
Bank: CREDITO VALTELLINESE
IBAN: IT 26 T 05216 03229 000 000 011724
BIC/SWIFT: BPCV IT 2S
Outside Italy, by way of an international check made out to the Pontifical Council for Health Pastoral Care.
There will be simultaneous translation into English, Spanish, French, and Italian.
For admission to the Synod Hall, participants will have to present an ID badge, which can be collected from the Office of the Pontifical Council from Monday, November 7 to Wednesday, November 9 (from 9.00 a.m. to 6.00 pm.), then on Thursday, November 10 the Secretariat will be transferred to the New Synod Hall.
