Dear Colleagues,
I am in writing to all of you to create awareness on a specific case that is dear to my heart.
Lino Gabriel Benso was born on 2/27/2019
And at birth suffered from an HIE hypoxic ischemic encephalopathy injury.
72 hour hyperthermia treatment assisted with preserving his brain and internal organs from further damage. An MRI was taken and showed that the worst damage was to the bilateral basal ganglia.Lino has begun to show signs of the brain injury, most of which is related to exactly what his MRI had shown. His fine motor skills that were affected include his mouth & tongue , fingers and wrists, arms & legs, trunk & neck.
He’s had numerous diagnoses in just 5 months of life:
Secondary microcephaly
Craniosynostosis
GERD
Sandifer’s Syndrome
Failure to thrive
Oral aversion
Cow milk protein allergy
Seizure disorder
Cortical visual impairment
Hypertonia
Hypotonia
Clonus
Emotional regulation dysfunction
Temperature regulation dysfunction.
Here are some of the diagnoses also likely or possible in his future:
Cerebral Palsy
Epilepsy
Delayed visual maturation
Hearing loss
Autism
ADHD & ADD
Cognitive delays
Speech delay.
The family currently lives in the United States of America , specifically the father Stefano I have known since he was a child and an active member of our local catholic community.
The family is currently looking for financial assistance as the expenses despite the use of private insurance are adding up on a daily basis.
Lino is in need of daily assistance and daily support for doctors appointments and therapy’s.
A go fund me campaign has been started from the parents as you can see in the link below .
I appreciate the time that all of you are taking to read this cause and the support given.
Thank you!
Vincenzo Defilippis , President Feamc
