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Introducción a las enfermedades raras

INTRODUCCIÓN A LAS ENFERMEDADES RARAS Manuel Cruz Hernández Catedrático de Pediatría Preámbulo con ilusión y esperanza (21 de noviembre de 2018) Es un honor la colaboración con esta institución y un verdadero reto participar en esta Jornada. Lo acepto porque estoy entre los que han

Rare Disease Day 2019

WHAT? Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. The campaign targets primarily the general public and also seeks to

WORLD DAY: AMYOTROPHIC LATERAL SCLEROSIS

What is ALS/MND? Motor Neurone Disease (MND) is the name given to a group of diseases in which the nerve cells (neurones) that control muscles undergo degeneration and die. Amyotrophic Lateral Sclerosis (ALS), Progressive Muscular Atrophy (PMA), Progressive Bulbar Palsy (PBP) and Primary Lateral Sclerosis

POPE FRANCIS ON RARE DISEASES (NOV. 2016)

[ EN  – ES  – FR  – IT ]   MESSAGE OF HIS HOLINESS POPE FRANCIS TO PARTICIPANTS IN THE 31th CONFERENCE OF THE PONTIFICAL COUNCIL FOR HEALTH CARE WORKERS   To the Most Reverend Monsignor Jean-Marie Mupendawatu Secretary of the Pontifical Council for Health Care Workers I

VATICAN EVENT SUPPORTS PEOPLE WITH RARE AND NEGLECTED DISEASES

(Vatican Radio) A Vatican conference this week aims to show solidarity for persons affected by rare diseases and highlight the plight of poor and vulnerable populations afflicted by neglected diseases, many of whom live in the most remote rural areas of the world. The conference, hosted

P.C. CULTURE HOSTS CONGRESS ON STEM CELLS, PEDIATRIC CANCER & RARE DISEASES

An International Conference on the Progress of Regenerative Medicine and its Cultural Impact, in The Vatican, April 28 - 30, 2016. This exclusive international event gathers the world’s leading cell therapy scientists, physicians, patients, ethicists and leaders of faith, government and philanthropy to discuss the

RARE DISEASE DAY 2016

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. The campaign targets primarily the general public and also

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